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Putting Londoners centre stage of our work.
OneLondon works closely with Londoners to join up health and care information in a way that meets public expectations, and builds trust and confidence.
In 2020 we held a Citizen’s Summit, the world’s largest public deliberation on the use of health and care data.
We have continued to ensure Londoners are centre stage of our work through other large deliberative events, ongoing work with our Citizens’ Advisory Group and other ways such as through the Universal Care Plan’s People with Lived Experience Group.
Thank you to everyone who has offered their time to come to our events, speak to us and give us their views. You are helping us join up information in a safe and secure way to transform London’s health and care services.
If you are interested in getting involved in this work please do get in touch with us at enquiries.onelondon@nhs.net
What Londoners have told us
Through our ongoing work with Londoners they have told us:
- We expect all health and care organisations in London to join-up identifiable information to support the provision of care to individuals, with staff seeing information relevant to their roles through some sort of role-based access control.
- We expect all health and care organisations in London to join-up de-personalised information, as part of a population dataset, to support proactive care, planning and research and development.
A summary of the recommendations from our deliberative events can be viewed here.
Reports
Detailed reports and recommendations can be viewed below:
2020 Citizens' Summit
The OneLondon Citizens’ Summit took place in 2020 and brought together 100 Londoners, reflective of the Capital’s diverse population, to debate and deliberate and identify Londoners’ expectations as to how their health and care data should be used, who should have access to it, and for what purpose.
The Summit resulted in a set of recommendations for local and national leaders, politicians and policymakers. It has already helped support work across London to safely and securely join-up of health and care information – for example through the introduction of the London Care Record.
Visit our Citizens' Summit page
2022 Public Deliberations
In 2022 One London held a public deliberation with Londoners to inform its ongoing work to join up health and care data. In particular it focused on whether people wanted to keep locally controlled approaches, move towards a more pan-London approach, or a combination of these approaches. It resulted in a set of recommendations.
2023 OneLondon Citizens’ Advisory Group
The Citizens’ Advisory Group comprises around 100 Londoners reflective of the Capital’s diverse population. The Group first came together in workshops that took place in summer 2023 focusing on the research and development elements of the OneLondon Secure Data Environment. In particular they considered who should be able to access this, what safeguards should be in place and how much they should be charged. They produced a series of recommendations that are informing the development of the OneLondon SDE.
Ongoing work with the OneLondon Citizens’ Advisory Group
Members of the Citizens’ Advisory Group continue to support our work through focus groups and other engagement methods. We also produce regular reports which detail our work with citizens. You can read the 22/23 version here. The 23/25 version is currently being produced.
How your information is kept safe
By law, everyone working in, or on behalf of health and social care organisations, must respect patient privacy and keep your information safe. Our systems use a secure and encrypted system that meet NHS and social care security standards.
Only health and care staff involved in your care are allowed to view your records and an audit trail of everyone who accessed records using OneLondon tools is kept. Only approved organisations and/or approved researchers will be able to access the London Secure Data Environment.
Deciding not to share your information
You have a right to determine how your health and care information is used. You can object to your information being shared for direct care and to opt out of your data being used for planning and research purposes.
More information about how your health and care information is used, as well as how to exercise your right to object or opt out is available here.