How OneLondon uses your health and care information
Secure sharing of your health and care data helps to ensure you receive the best possible joined-up care.
It also supports effective planning of services in the Capital as well as developing a better understanding of different diseases and conditions so more effective treatments can be developed.
Detailed Privacy Notices setting out how we use your health and care information, including the legal bases for this, can be found at the bottom of this page.
Your rights.
As required by law, you have a right to:
- Request a copy of your record
- Request that errors in your records are corrected
- Object to your data being processed
- Request that your data is erased (right to be forgotten)
Information about your rights can be found at the Information Commissioners Office Information Page.
Currently there are different ways to object to or opt-out of your data being shared through the OneLondon digital systems. These are set out below. OneLondon is working to streamline these arrangements.
London Care Record, Universal Care Plan, eMHA by Thalamos system
Your information is shared to provide safe, effective and joined-up care and treatment. We call this direct care.
If you would prefer your health and care information not to be shared for direct care and treatment purposes you can object to sharing your information in the:
- London Care Record
- Universal Care Plan
- eMHA by Thalamos system
Not sharing may mean that it will take the people who are caring for you (such as nurses, doctors and social workers) longer to work out the best way to help and care for you.
If you have concerns about your data being shared and want to raise an objection, the best way to do this is by contacting the staff who are providing your care such as your GP or your doctor or consultant at your hospital.
Some parts of London offer a central process for objecting to information being shared in the London Care Record. You can find out more below:
- If you live in south east London click here
- If you live in north east London click here
- If you live in north west London click here
- If you live in north central London click here
- If you live in south west London click here
Important points to note
If you choose to object, you are only objecting to sharing of your medical record through the OneLondon digital systems. Other information sharing projects – such as that National Care Records Service – are operated and managed separately, so you need to object to each programme individually.
There may be circumstances where your objection may not be upheld. For example if there is a safeguarding issue, or in the case of an individual who might be at risk from harming themselves or a member of the public, or in an emergency.
London Secure Data Environment (SDE)
You have the right to object to your data being used in the London SDE for planning or improving health and care services, and research purposes. There are a number of ways of doing this.
You can use the Local Data Opt-Out to stop your information being used by the London SDE for planning and improving health and care services, and research purposes. Details about how to to do this are available on this page.
If you have a complaint about how your request has been handled you can email us via NELondonicb.oneLondon.opt-out@nhs.net and include ‘complaint’ in the subject.
You can also opt-out of your data being used for planning and improving health and care services, and research purposes across NHS England using the National Data Opt-Out service. More information is available on the NHS Digital website.
Local Data Opt-Out Service
You can use the Local Data Opt-Out service to stop your information being used by the London SDE for planning and improving health and care services, and for research purposes by:
- writing to us via email: NELondonicb.oneLondon.opt-out@nhs.net (Please use the subject line “Opting-Out”)
- writing to us via post: OneLondon Service Desk, NHS North East London, 9th Floor, 20 Churchill Place, London, E14 5HJ
- calling us: 0203 182 2900 A voicemail service operates 24 hours a day 7 days a week. Please leave a message providing us with your contact name, telephone number and the fact that you would like to opt-out of your data being used for secondary purposes. We will contact you to process your request within office hours (Monday – Friday 09:00 – 17:00)
How we use your information
You can read the OneLondon privacy notices by clicking on the relevant links below. These documents explain why health and care organisations share information about you, how that information may be used and the legal basis for this.
- London Secure Data Environment:
- London Data Service – full version
- London Data Service – plain English version
- London Data Service – easy read version
- London Analytics Platform – full version
- London Analytics Platform – plain English version
- London Analytics Platform – easy read version
